Day 1: Meaning Behind Your Blog Name

After giving birth to Landon, my emotions were all over the place.  I think I experienced emotions I never knew existed.   At a time when I was feeling most vulnerable, fear of the unknown took over and cast a dark cloud over those first couple of days.  I was searching deep within for the confidence & strength to face the challenges that would lie ahead.  And there was the answer, the light I was searching for, right before my eyes.....in "my boys".......

.......open hearts, open minds & unconditional love!!!

Landon is this little ray of "sunshine", touching the hearts of those lucky enough to meet him.  He is this tiny bundle of energy & love, with a smile that could light up any room!  

Landon is........ My Little "Son-Shine"!!  

Day 0: (I'm Back!!)

OK, so I have fallen into a bit of a "funk" lately, this past winter has really kicked our "you know what" HARD.  There are so many things that I have started but just can't seem to continue, maintain or finish, for that matter. One of those being Landon's video of his 1st year.....if you are wondering right now.....YES, Landon just turned 2 this past February.....SAD, huh?!  It seems every time I take 2 steps forward, I fall (at least) 6 steps behind.  This is so UNLIKE me!!  I am a go-getter, a follow-through-er and someone who functions BEST when I am overly consumed by activity.  Crazy, huh?!  These are all great.....WHEN you can keep your balance!  Sadly, I lost my balance AND my drive to push forward.  But, a couple days ago, I managed to sit down and catch up on a few of my blog readings.  And there it was, staring me right in the face, SOMEONE, who like me, was grasping with all their might to hold on, before they completely lost total control of that balance we call LIFE, too.  


So, here is my desperate attempt to regain control of my "go-getter-ness" & my "follow-through-er-ness"!!  And my attempt to jump back on that teeter/totter of life......it WILL get wobbly at times......but my new mission is to keep my feet firmly planted, rock with it, AND TRY not to fall off....(again)!!!


To help me get back in the swing of blogging regularly, I'm going to give a 30 day challenge a try.  I didn't quite make it through the 31 for 21, but I really did try.  So here is the list for the next 30 days, borrowed from Shelley & my blogging buddy, Melissa.  


Thanks Melissa for giving me the little nudge, I.SO.SHAMELESSLY.NEEDED!!!



Day 0: The 30 Day Challenge Explanation and Description

Day 1: Meaning behind your blog name
Day 2: Take a photo of a random part of your day and tell us about it
Day 3: Photos from your wedding
Day 4: A weird hobby or collection
Day 5: A song that means a lot to you
Day 6: A random picture that makes you happy
Day 7: Favorite books
Day 8: A place you've traveled to
Day 9: Your favorite quote
Day 10: Something you're afraid of
Day 11: TV shows that your currently addicted to
Day 12: Something you don't leave the house without
Day 13: A photo that makes you laugh
Day 14: A website you love to visit
Day 15: Share a Bible verse 
Day 16: Describe your dream house
Day 17: What’s in your purse?
Day 18: Photos from around your town
Day 19: Something you miss
Day 20: Nicknames
Day 21: Favorite Movies
Day 22: Share the oldest photo that’s saved on your computer
Day 23: Something you fear
Day 24: A photo of somewhere beautiful
Day 25: 3 things you hope to accomplish by the end of the year
Day 26: Something that stresses you out
Day 27: Your favorite poem
Day 28: A photo of the inside of your car
Day 29: 5 things you are thankful for
Day 30: a picture from today

It's Official......

.......Landon is now a member of the TUBE CLUB!!!  One week ago today, I sat in the operating room at Children's Hospital Boston, with a medical team of "6", and held my baby boy in my arms as he slowly went to sleep......and.i.was.a.MESS!!!  I tried to prepare myself for that day, getting lots of words of encouragement from those who joined the club before us.  And I must say, after this experience, I am convinced that you just never get used to it!  I held it together until his eyes started to roll behind his head....and then....I lost it!  That was the very moment, I realized that I was the one being comforted by "the team".  It was such a pathetic sight....and I am glad that it is over!!

Scott & I waited patiently in the waiting room, watching the clock intensely, after all this was "supposed" to be a 10 minute procedure.  Twenty-five minutes later we were brought into the recovery room to see our little trooper.  

...........Let me back track a bit here............

 Landon's surgery was scheduled for 7:30am.  We live about 45 minutes south of Boston.  However, we had to be at the hospital 1 1/2 hours prior to surgery......6am...which means we had to leave our house by 5am......which means we had to be up @ 4:15am to get ourselves & Landon up & out the door by 5!!!  When I went in Landon's room to get him up.......both eyes were SEALED SHUT!!!  Yep, total congestion, cough & a runny nose!!!  Oh, and did I mention that he had just finished his Augmentin, two days prior, for a double ear infection!!  That would make 3 ear infections in 1 month (which means antibiotics for 1 month straight)!!  

So to the hospital we go, wondering if they are going to go through with the surgery.  When Dr. Lee met with us prior to the surgery, he examined Landon and checked his ears....and wouldn't you know it....another stinkin' ear infection.  Poor little guy, just can't catch a break!!  Dr. Lee felt that it would be in Landon's best interest if we proceeded with the surgery.  Scott & I agreed.  

........Fast forward here!!.........

Twenty-five minutes later....why....because of that ear infection!!  Apparently, when Dr. Lee made the incision in his right ear....EXPLOSION.....(I won't gross you out with the details)!!!  His right ear had to be cleaned & suctioned out well, and sort of took a little more time than originally expected.  When we were brought in to see Landon he was awake and out of the crib already, a nurse was holding him and they were watching the construction work out the window.  She informed us that that was Landon's preference, and he was very adamant about it!!  Seems our little smiley boy awoke from the anesthesia quite fussy & irritable!!  It was awful seeing him like that, so uncomfortable:(  After some Tylenol, and his milk, we got the thumbs up to go home (about 1 hour later)!!  Landon slept the whole way home.....and when we got home.....he was ready to get back to his regular schedule....PLAYTIME!!!

Scott & I noticed some immediate results, definitely a little more sensitive to sound, and tons of babbling.  It was as if he LOVED the sound of his own voice!!  Over the next couple of days, we also noticed Landon starting to walk with his arms...down....as opposed to walking with his arms up like a zombie.  It appears that his balance is much better.  And now a week later, we are hearing even more sounds, /m/, /b/, /d/ & /l/'s!  He is now saying 5 words clear enough for others to understand: eat (eeeeee, while signing eat), light (liiiiiiii, while pointing up at the light), yes (yeeeaaahhh, while signing yes), up (uuhhh, while signing/pointing up) and Elijah (LiLi, long i) while pointing at Elijah!!!  I'm so happy to see the progress in this area and so proud of our little man!!

Landon recently caught another cold and his nose and eyes are runny again.  Brought him to the pediatrician for an ear check.....and I am happy to report.....the TUBES are working......they were in place & NO FLUID!!!  YEAH!!!

As nervous as I was about this whole procedure, I can honestly say, it is the BEST thing we could have done for Landon.  I'm just so sorry that he had to endure all those ear infections this past year.

  

     ***Before*** 

***After***

Happy Belated World Down Syndrome Day 3/21/11

I really wanted to do this post yesterday, but we had such a busy day:(  Landon & his brothers represented once again wearing their awareness shirts!!  Mason & Elijah love telling people what their shirts mean and why they wear them......in 2 short years, these boys have become Landon's BIGGEST ADVOCATES!!  This journey is teaching us a lot as a family.  I am so proud of my boys!!

Landon spent the day at daycare/school with his teachers & friends.  Landon's school took part in celebrating World Down Syndrome Day......helping to spread awareness for Landon & all his friends that have been blessed with that magical chromosome!  They wore blue & yellow, decorated their door with our local support groups logo and wrote all the children's names in sign language.  They painted in blue & yellow and colored World Down Syndrome logos, and one very sweet little girl gave hers to Landon!!  *sigh*  One of Landon's teachers (Becky) made all the children blue & yellow ribbons that they pinned on their shirts and they even sold awareness bracelets!!

WHAT AN AMAZING DAY OF AWARENESS & CELEBRATION!!!!

Thank you Hawthorn Hill Preschool, parents & students for opening your door and your hearts to Landon!  You go above & beyond every single day to make sure that Landon always feels like he's part of the Hawthorn Hill Family!!  Your dedication & commitment to education & raising Down syndrome awareness is endless.  We can't thank you enough for proving that INCLUSION does work!!  Day in and day out you continue to break down any preconceived notion or barrier, constantly proving just how much you believe in Landon & his abilities!!  But most of all, thank you for giving Landon a solid and positive educational & social foundation.......there is so much hope for Landon's future!!

Happy World Down Syndrome Day Friends!!!  We are so blessed to share this journey with each and every one of you!!

Last night our local support group, "21 FrienDS", hosted an (adult) World Down Syndrome Awareness Night at a local  Ale House......what an UNBELIEVABLE turnout!!!

Family, friends, raffles and entertainment......such an amazing night!!  Thank you all for joining us in celebrating Down Syndrome Awareness.......your support means the world to us!!! 

Tolerance PSA: "Dear Parents"

OUR CHILDREN ARE SPEAKING...ARE YOU LISTENING??!!

"Sticks and stones may break my bones, but names will never hurt me!!"  Any parent whose heart has ever ached for their crying child because another child did not want to play with them or called them names, knows first hand how untrue this statement really is.  Words are extremely powerful and they DO HURT!! Children are products of their own environment.....RESPECT begins at home!!

Today is 3.2.11, Spread the Word to End the Word Day!  Please take the time to visit the link below and make your pledge today.......to stop the use of the word "retard(ed)".  It's time we teach our children RESPECT....for themselves & others!!

http://r-word.org/

LANDON'S B-DAY PARTY PICS

A week ago this past Saturday we celebrated Landon's 2nd Birthday (Party)......BOWLING!!! Landon officially turned 2 on Feb. 11th but we had no luck getting a party date any sooner......guess I'll have to plan a little earlier next year!!  And although Landon had a restless night sleeping the night before his party.......yes, CROUP decided to rear its ugly head once again.......my little LOVE still managed to put a smile on his face and enjoy his party (with his friends) AND he bowled one heck of a game, to boot!!!!  lol

The party was small, a few family members, some old friends & some new (well, not SO new, anymore)........a great time was had by all!  At one point after the cake, I found myself just looking around the room feeling REALLY BLESSED to have so many wonderful people in my life.  We are 2 years into this journey.........and I wouldn't be where I am today, without the love & support of each & every one of them.  Although we were celebrating Landon's 2nd birthday, we were also celebrating so much more......milestone's, achievements, perseverance, strength, family, friends, unconditional love, ACCEPTANCE & LIFE!!  Thank you to those who were able to celebrate with us.......and THANK YOU to so many others (family & friends) who have been fueling this journey with LOVE & ACCEPTANCE since the day Landon was born!!  We love you all:)

 Landon's best buddy's.....Thomas & Brenna 

{& Brook too}!!

Cousins & Friends!!!!! 

BROTHERS!!!!!

Happy 2nd Birthday sweet boy....we love you to the 

moon & back!!!!!

Spring is in the Air

These past 2 days we have had some BEAUTIFUL weather.....59 degrees!!  You know the Spring is coming when you wake up to the birds chirping first thing in the morning!  Ya know, those same chirping birds that I will most likely come to DISLIKE for waking me up a bit too early in the Spring.....but for now I'll take it!!

Someone else is getting a little spring fever too.......Landon has been practicing his climbing and sliding skills at school so that he can take those skills to the playground!!  And this mama.......CANNOT WAIT!!!

Thank you to Landon's teacher, Courtney, for taking these pics.......YOU'RE THE BEST!!